Welcome Members!

Welcome to Life with Multiple Myeloma Community!

Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them.

Multiple Myeloma is a cancer of the plasma cells which are responsible for producing antibodies. In multiple myeloma, collections of abnormal plasma cells accumulate in the bone marrow, where they interfere with the production of normal blood cells. Most cases of myeloma also feature the production of a paraprotein, an abnormal antibody which can cause kidney problems. Bone lesions and hypercalcemia (high calcium levels) are also often encountered.

This site is a virtual community intended to be a safe place for patients and family members as young as age 12, to visit for information, discussion, venting and mutual support. Members come from many backgrounds. Some have a strong religious faith, and others no faith; some are children and others adults, rich and poor, graduate educated or taught by life. Our common denominators are that we share a life journey, and we try to help each other.

Though we get occasional visits from medical doctors, the site is not routinely supported by medical professionals. Nobody here can diagnose you or tell you what your treatment choices “should” be. We might inform your choices by sharing individual experiences and information developed by study as lay people. But Life with Multiple Myeloma is not intended to replace the advice or treatment of licensed medical professionals. Readers should validate any information they take away from here, against the experience of a licensed medical doctor. Site owners and moderators are not legally responsible for the accuracy of information shared on the site.

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How is Ben’s Friends Different from Social Media and Other Support Sites?


Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them.

We’re interested in you as a person, and in your struggles as a rare disease patient.  But we don’t want to know your name or where you live. We won’t even allow you to use your real name when you register for one of our communities. Because when it comes to medical things, anonymity is important in our googly universe.  Your information is never shared, and your activity never tracked by adware.

When Ben’s Friends asks for the country and region you live in, that’s in case your fellow members can recommend local resources and help, and so everyone knows what kind of medical system there is where you live.  That’s important when it comes to giving and getting support. Because we are all about support, and we’re all in this together.. 

Ben’s Friends: Safe and Supportive. 
And anonymous to keep it that way.


Why create an account?


Posts on the different Ben’s Friends communities can be read by anyone on the internet. You can browse through the different topics and find most of the information you’re looking for but there are many things you won’t be able to do unless you create an account. These include:

Making your own posts. Although you’re able to find useful information just by reading other members’ posts, you might still have a lot of questions in your mind. Either you want to start a new topic to talk about them in detail or you want to reply to a comment on a thread. These won’t be possible unless you create a new user account.

Viewing other members’ profiles. Member profiles include information about the country or region they are from, whether they are a patient or a caregiver, and details about their disease and treatments. Maybe you came across an interesting post and you want to learn more about the member. Or maybe you’re looking for members who are from the same country as you. Having a user account allows you to see other member profiles and find information that may be relevant.  

Sending private messages. Aside from being able to post publicly and commenting on a thread, having a user account also allows you to send private messages both to other members and moderators. In case you want to discuss a topic only with a specific person, this is possible by sending private messages when you have created your account.

Click here to create an account and join.


Latest Discussions

  • Ben’s Friends inks partnership with ClozTalk
    by Ben_Munoz on March 21, 2023

    Sascha Gallardo – July 1, 2020 We’re excited to announce that Ben’s Friends has partnered with ClozTalk, a social impact company that helps charities raise people’s awareness of their mission. ClozTalk now designs apparel like t-shirts, hoodies, and jackets with the logo of Ben’s Friends. As more people get to know our organization through the sale of these items, we can reach more […]

  • Rare Disease Diagnosis: Difficulties and Advancements
    by Ben_Munoz on February 22, 2023

    Sascha Gallardo – August 31, 2020 Delays in getting an accurate diagnosis for a rare disease is very common. Patients would visit a physician, present their symptoms, and then they would be told there is nothing wrong with them. They’d visit another one, would be referred to a specialist, and then get some tests done only to go back to square one after a few months. The same process would be […]

  • Global Genes’ Rare Daily website features Ben Munoz
    by Ben_Munoz on February 21, 2023

    Sascha Gallardo – September 29, 2020 Ben’s Friends co-founder and chairman, Ben Munoz, was interviewed recently for the Rare Leader, a regular feature of the Global Genes’ Rare Daily website. In the Q&A piece, Ben shares how the organization started, its mandate and strategy, new projects and management philosophy. Ben underscores how important focus is in keeping the organization […]

  • Ben Munoz shares the story of Ben’s Friends in RARECast
    by Ben_Munoz on February 20, 2023

    Sascha Gallardo October 6, 2020 Global Gene’s podcast interviewed Ben Munoz recently about his experience as a survivor of an arteriovenous malformation stroke, connecting with a fellow AVM survivor, and eventually co-founding Ben’s Friends. Ben shared with RARECast host Daniel Levine how fortunate he was to have survived the stroke and not suffer anything major, but that the couple years […]

  • Some of Ben’s Friends secrets to maintaining healthy communities
    by Ben_Munoz on February 20, 2023

    Sascha Gallardo – October 26, 2020 Ben’s Friends has been successfully running online patient communities for thirteen years and it just continues to grow. We are home to the most active communities of AVM survivors, people living with psoriatic arthritis, fibromyalgia, and eagle syndrome, to name a few. Thanks to our moderators who dedicate their time and effort to ensure that our […]

  • What’s Your And? Podcast features Scott Orn
    by Ben_Munoz on February 13, 2023

    Sascha Gallardo – November 5, 2020 Ben’s Friends co-founder and board member Scott Orn was featured recently in John Garrett’s podcast. Titled What’s Your And?, the podcast focuses on the guests’ interests or what they love to do outside of their job and how these interests affect their work. In the episode, Scott talked about his volunteer work at Ben’s Friends, which is what he […]

  • Once Upon a Gene podcast Features Ben’s Friends
    by Ben_Munoz on February 8, 2023

    Sascha Gallardo – February 22, 2021 Once Upon a Gene recently interviewed Ben Munoz about the story behind the founding of Ben’s Friends, what motivated him to embark on this journey of building online communities for rare diseases, and what ripple effect if any, does the community have on the people that found help on the sites. Ben shared how after surviving an arteriovenous malformation […]

  • Benefits of Having a Rare Disease and Chronic Illness Support Group
    by Ben_Munoz on February 8, 2023

    Sascha Gallardo – January 29, 2021 Having a rare or chronic illness can make a person feel isolated and lonely. They may have people who definitely care but they would constantly need to connect with someone who is going through the same things. Having people around who care is one thing, but having people in your life who really “get it” and know exactly what you are going through, is […]

  • Ben’s Friends Lead Interns
    by Ben_Munoz on January 30, 2023

    Sascha Gallardo – February 1, 2021 Keeping Ben’s Friends communities safe and supportive would not be possible without the help of wonderful people who devote their time and skills to meet this objective. We have moderators who take care of their respective communities in various ways such as by screening membership applications and flagging posts that affect the friendly atmosphere we […]

  • Nonprofit SnapCast features Ben Munoz
    by Ben_Munoz on December 7, 2022

    Sascha Gallardo – February 24, 2021 Nonprofit Snapcast, a podcast that tackles nonprofit management issues, recently featured Ben’s Friends president and co-founder, Ben Munoz. The interview focused specifically on how the organization is able to do more with less. Ben explained that the main reason why the organization thrives even though it has never had large resources is because of the […]