{"id":156,"date":"2021-06-11T10:45:18","date_gmt":"2021-06-11T10:45:18","guid":{"rendered":"https:\/\/bf2021.wpengine.com\/?page_id=156"},"modified":"2025-02-12T15:07:37","modified_gmt":"2025-02-12T15:07:37","slug":"welcome-test-page","status":"publish","type":"page","link":"https:\/\/lifewithmultiplemyeloma.org\/","title":{"rendered":"Finding support for Multiple Myeloma Disease? Connect with people like you."},"content":{"rendered":"<p>\u00a0<\/p>\n<p><img fetchpriority=\"high\" decoding=\"async\" class=\"alignnone wp-image-379\" title=\"\" src=\"https:\/\/lifewithmultiplemyeloma.org\/wp-content\/uploads\/2024\/04\/Myeloma-1-300x125.png\" alt=\"A welcome banner for Life With Multiple Myeloma community featuring a hopeful patient and caregiver\n\" width=\"782\" height=\"326\" srcset=\"https:\/\/lifewithmultiplemyeloma.org\/wp-content\/uploads\/2024\/04\/Myeloma-1-300x125.png 300w, https:\/\/lifewithmultiplemyeloma.org\/wp-content\/uploads\/2024\/04\/Myeloma-1.png 720w\" sizes=\"(max-width: 782px) 100vw, 782px\" \/><\/p>\n<p>Life with Multiple Myeloma is an online support community that helps people affected by multiple myeloma. Multiple Myeloma is a cancer of the plasma cells which are responsible for producing antibodies.<\/p>\n<p>In multiple myeloma, collections of abnormal plasma cells accumulate in the bone marrow, where they interfere with the production of normal blood cells. Most cases of myeloma also feature the production of a paraprotein, an abnormal antibody which can cause kidney problems. Bone lesions and hypercalcemia (high calcium levels) are also often encountered.<\/p>\n<p>This community is powered by <em><strong><a href=\"http:\/\/bensfriends.org\/\" target=\"_blank\" rel=\"noopener\">BensFriends.org<\/a>,<\/strong><\/em> a network of patient support communities for rare diseases. Our mission at <em>Ben\u2019s Friends <\/em>is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them.<\/p>\n<p>This site creates a virtual community where patients and family members, as young as age 12, can find information, discussion, venting, and mutual support in a safe space. Members come from many backgrounds. Some have a strong religious faith, and others no faith; some are children and others adults, rich and poor, graduate educated or taught by life. Our common denominators are that we share a life journey, and we try to help each other.<\/p>\n<p>Though we get occasional visits from medical doctors, the site is not routinely supported by medical professionals. Nobody here can diagnose you or tell you what your treatment choices \u201cshould\u201d be. We might inform your choices by sharing individual experiences and information developed by study as lay people. But Life with Multiple Myeloma is not intended to replace the advice or treatment of licensed medical professionals. Readers should validate any information they take away from here, against the experience of a licensed medical doctor. Site owners and moderators are not legally responsible for the accuracy of information shared on the site.<\/p>\n<p style=\"text-align: right;\"><strong><a href=\"https:\/\/lifewithmultiplemyeloma.org\/?page_id=198\" target=\"_blank\" rel=\"noopener\">Read More&#8230;<\/a><\/strong><\/p>\n<p><iframe title=\"Rare Disease Patient Communities by BensFriends.org\" width=\"648\" height=\"365\" src=\"https:\/\/www.youtube.com\/embed\/YBeRFnJkleU?list=PLho5Q53hrd4arNr-uM9ToVKSo09Lvg8Cx\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe><\/p>\n<h2 style=\"text-align: left;\"><strong>How is Ben\u2019s Friends Different from Social Media and Other Support Sites?<\/strong><\/h2>\n<p>Our mission at Ben\u2019s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them.<\/p>\n<p>We\u2019re interested in you as a person, and in your struggles as a rare disease patient.\u00a0 But we don\u2019t want to know your name or where you live. We won\u2019t even allow you to use your real name when you register for one of our communities. Because when it comes to medical things, anonymity is important in our googly universe.\u00a0 Your information is never shared, and your activity never tracked by adware.<\/p>\n<p>When Ben\u2019s Friends asks for the country and region you live in, that\u2019s in case your fellow members can recommend local resources and help, and so everyone knows what kind of medical system there is where you live.\u00a0 That\u2019s important when it comes to giving and getting support. Because we are all about support, and we\u2019re all in this together..\u00a0<\/p>\n<p>Ben\u2019s Friends: <strong>Safe and Supportive.\u00a0<\/strong><br \/>And <strong>anonymous<\/strong> to keep it that way.<\/p>\n<div>\u00a0<\/div>\n<h2 style=\"text-align: left;\"><b>Why create an account?<\/b><\/h2>\n<p><span style=\"font-weight: 400;\">Anyone on the internet can read posts from the different Ben\u2019s Friends communities. You can browse through the different topics and find most of the information you\u2019re looking for but there are many things you won\u2019t be able to do unless you create an account. These include:<\/span><\/p>\n<p><i><span style=\"font-weight: 400;\">Making your own posts<\/span><\/i><span style=\"font-weight: 400;\">. Although you\u2019re able to find useful information just by reading other members\u2019 posts, you might still have a lot of questions in your mind. Either you want to start a new topic to talk about them in detail or you want to reply to a comment on a thread. These won\u2019t be possible unless you create a new user account.<\/span><\/p>\n<p><i><span style=\"font-weight: 400;\">Viewing other members\u2019 profiles<\/span><\/i><span style=\"font-weight: 400;\">. Member profiles include information about the country or region they are from, whether they are a patient or a caregiver, and details about their disease and treatments. Maybe you came across an interesting post and you want to learn more about the member. Or maybe you\u2019re looking for members who are from the same country as you. Having a user account allows you to see other member profiles and find information that may be relevant.\u00a0\u00a0<\/span><\/p>\n<p><i><span style=\"font-weight: 400;\">Sending private messages.<\/span><\/i><span style=\"font-weight: 400;\"> Aside from being able to post publicly and commenting on a thread, having a user account also allows you to send private messages both to other members and moderators. In case you want to discuss a topic only with a specific person, this is possible by sending private messages when you have created your account.<\/span><\/p>\n<p><a href=\"https:\/\/forum.lifewithmultiplemyeloma.org\/\" target=\"_blank\" rel=\"noopener\"><span style=\"font-weight: 400;\">Click here to create an account and join.<\/span><\/a><\/p>\n<h2 style=\"text-align: left;\"><strong>Latest Discussions<\/strong><\/h2>\n\n<div class=\"feedzy-c4be0272bdd2dbef8904171ce19caa39 feedzy-rss\"><ul><li  style=\"padding: 8px 0 13px\" class=\"rss_item\"><span class=\"title\"><a href=\"https:\/\/forum.lifewithmultiplemyeloma.org\/t\/today-is-giving-tuesday-here-are-two-easy-ways-to-help-our-community\/902\" target=\"_blank\" rel=\" noopener\">Today is Giving Tuesday. Here Are Two Easy Ways to Help Our Community<\/a><\/span><div class=\"rss_content\" style=\"\"><small>by <a href=\"\/\/forum.lifewithmultiplemyeloma.org\" target=\"_blank\" title=\"forum.lifewithmultiplemyeloma.org\">ModSupport<\/a> on December 2, 2025 <\/small><p>Hi everyone,\nToday is Giving Tuesday, a day when many people look for meaningful causes to support. If you would like to help our community today, here are two simple and meaningful options.\n1) Share our campaign with friends or family\nThis is one of the most helpful things members can do. Even if you cannot donate, you can still make a big impact by spreading the word. Here are a few [&hellip;]<\/p><\/div><\/li><li  style=\"padding: 8px 0 13px\" class=\"rss_item\"><span class=\"title\"><a href=\"https:\/\/forum.lifewithmultiplemyeloma.org\/t\/our-community-is-coming-together-here-is-how-you-can-help\/901\" target=\"_blank\" rel=\" noopener\">Our Community Is Coming Together. Here Is How You Can Help<\/a><\/span><div class=\"rss_content\" style=\"\"><small>by <a href=\"\/\/forum.lifewithmultiplemyeloma.org\" target=\"_blank\" title=\"forum.lifewithmultiplemyeloma.org\">ModSupport<\/a> on November 25, 2025 <\/small><p>Hi everyone,\nAs we approach the end of the year, our entire Ben\u2019s Friends network is launching our annual community support campaign. Each forum plays an important role, so we wanted to share a few simple ways you can help strengthen this space we all rely on.\nMost importantly, there is never any expectation to give financially. Just being here, supporting one another, and sharing your [&hellip;]<\/p><\/div><\/li><li  style=\"padding: 8px 0 13px\" class=\"rss_item\"><span class=\"title\"><a href=\"https:\/\/forum.lifewithmultiplemyeloma.org\/t\/thriving-with-multiple-myeloma-inspiration-from-tom-brokaw-s-journey\/900\" target=\"_blank\" rel=\" noopener\">Thriving with Multiple Myeloma: Inspiration from Tom Brokaw\u2019s Journey<\/a><\/span><div class=\"rss_content\" style=\"\"><small>by <a href=\"\/\/forum.lifewithmultiplemyeloma.org\" target=\"_blank\" title=\"forum.lifewithmultiplemyeloma.org\">ModSupport<\/a> on November 10, 2025 <\/small><p>When you hear the words multiple myeloma, what comes to mind? For many, a blood cancer. But for those who live with it, multiple myeloma becomes a lifelong journey\u2014one filled with treatment changes, emotional ups and downs, and important decisions about how to live well. Celebrated journalist Tom Brokaw revealed his diagnosis of multiple myeloma in 2013 and has since shared his experience, [&hellip;]<\/p><\/div><\/li><li  style=\"padding: 8px 0 13px\" class=\"rss_item\"><span class=\"title\"><a href=\"https:\/\/forum.lifewithmultiplemyeloma.org\/t\/help-accelerate-research-earn-up-to-550\/895\" target=\"_blank\" rel=\" noopener\">Help Accelerate Research, Earn up to $550<\/a><\/span><div class=\"rss_content\" style=\"\"><small>by <a href=\"\/\/forum.lifewithmultiplemyeloma.org\" target=\"_blank\" title=\"forum.lifewithmultiplemyeloma.org\">ModSupport<\/a> on May 6, 2024 <\/small><p>Did you know your white blood cells can make a big difference? By donating these cells through a process called apheresis, you can help researchers find new life-saving therapeutics and develop medical breakthroughs for multiple myeloma. Sanguine Biosciences is looking to enroll patients in a two-visit research study, conducted at a local blood donation center.\nBy donating white blood cells, you [&hellip;]<\/p><\/div><\/li><li  style=\"padding: 8px 0 13px\" class=\"rss_item\"><span class=\"title\"><a href=\"https:\/\/forum.lifewithmultiplemyeloma.org\/t\/help-advance-multiple-myeloma-research\/894\" target=\"_blank\" rel=\" noopener\">Help Advance Multiple Myeloma Research<\/a><\/span><div class=\"rss_content\" style=\"\"><small>by <a href=\"\/\/forum.lifewithmultiplemyeloma.org\" target=\"_blank\" title=\"forum.lifewithmultiplemyeloma.org\">ModSupport<\/a> on May 6, 2024 <\/small><p>Did you know your white blood cells can make a big difference? By donating these cells through a process called apheresis, you can help researchers find new life-saving therapeutics and develop medical breakthroughs for multiple myeloma. Sanguine Biosciences is looking to enroll patients in a two-visit research study, conducted at a local blood donation center.\nBy donating white blood cells, you [&hellip;]<\/p><\/div><\/li><li  style=\"padding: 8px 0 13px\" class=\"rss_item\"><span class=\"title\"><a href=\"https:\/\/forum.lifewithmultiplemyeloma.org\/t\/looking-for-your-multiple-myeloma-stories\/892\" target=\"_blank\" rel=\" noopener\">Looking For Your Multiple Myeloma Stories!<\/a><\/span><div class=\"rss_content\" style=\"\"><small>by <a href=\"\/\/forum.lifewithmultiplemyeloma.org\" target=\"_blank\" title=\"forum.lifewithmultiplemyeloma.org\">ModSupport<\/a> on January 10, 2024 <\/small><p>@trust_level_0\nDear Multiple Myeloma Support Member,\nFor over 10 years, the Ben\u2019s Friends online rare patient communities, run &amp; moderated by rare patients themselves, have been a source of support for many of us, living with rare diseases.\nBut it\u2019s not enough. We would like more people to know about this wonderful service.\nTo that effect, we are planning a social media campaign that will [&hellip;]<\/p><\/div><\/li><li  style=\"padding: 8px 0 13px\" class=\"rss_item\"><span class=\"title\"><a href=\"https:\/\/forum.lifewithmultiplemyeloma.org\/t\/calling-mothers-of-children-with-rare-diseases-of-all-ages\/891\" target=\"_blank\" rel=\" noopener\">\ud83d\udce2 Calling mothers of children with rare diseases of all ages<\/a><\/span><div class=\"rss_content\" style=\"\"><small>by <a href=\"\/\/forum.lifewithmultiplemyeloma.org\" target=\"_blank\" title=\"forum.lifewithmultiplemyeloma.org\">ModSupport<\/a> on August 12, 2023 <\/small><p>Ben\u2019s Friends has launched a new community for moms raising children with rare diseases and chronic conditions and we are inviting you to join\n\n  \n      \n\n      Warrior Moms Living with Rare Disease\n  \n\n  \n    \n\nWarrior Moms Living with Rare Disease\n\n  Warrior Moms fighting rare diseases together.\n\n\n  \n\n  \n    \n    \n  \n\n  \n\n\nPlease share the community with other families who are affected. 70% [&hellip;]<\/p><\/div><\/li><li  style=\"padding: 8px 0 13px\" class=\"rss_item\"><span class=\"title\"><a href=\"https:\/\/forum.lifewithmultiplemyeloma.org\/t\/have-you-heard-of-multiple-myeloma\/888\" target=\"_blank\" rel=\" noopener\">Have you heard of Multiple Myeloma?<\/a><\/span><div class=\"rss_content\" style=\"\"><small>by <a href=\"\/\/forum.lifewithmultiplemyeloma.org\" target=\"_blank\" title=\"forum.lifewithmultiplemyeloma.org\">Ben_Munoz<\/a> on May 4, 2023 <\/small><p>Sascha Gallardo \u2013 March 28, 2023\n\nBeing diagnosed with cancer can have a tremendous impact on the patient\u2019s life. From dealing with the diagnosis emotionally, to finding the care team they can rely on and living with the treatment side effects.\nSome patients, however, are affected by a rare type of cancer. As defined by the National Cancer Institute, a rare cancer affects less than 40,000 [&hellip;]<\/p><\/div><\/li><li  style=\"padding: 8px 0 13px\" class=\"rss_item\"><span class=\"title\"><a href=\"https:\/\/forum.lifewithmultiplemyeloma.org\/t\/ben-s-friends-members-to-benefit-from-cutting-edge-health-data-management-tool\/887\" target=\"_blank\" rel=\" noopener\">Ben\u2019s Friends Members to Benefit from Cutting-edge Health Data Management Tool<\/a><\/span><div class=\"rss_content\" style=\"\"><small>by <a href=\"\/\/forum.lifewithmultiplemyeloma.org\" target=\"_blank\" title=\"forum.lifewithmultiplemyeloma.org\">Ben_Munoz<\/a> on May 4, 2023 <\/small><p>Sascha Gallardo \u2013 January 14, 2020\nMembers of Ben\u2019s Friends patient communities can soon take advantage of a state-of-the-art technology that will enable them to manage their medical information in a secure multilingual digital tool, give them access to an online referral service for physicians and clinics, and let them participate in research that will benefit the rare disease community. [&hellip;]<\/p><\/div><\/li><li  style=\"padding: 8px 0 13px\" class=\"rss_item\"><span class=\"title\"><a href=\"https:\/\/forum.lifewithmultiplemyeloma.org\/t\/ben-s-friends-brings-learning-about-patient-support-to-the-next-level\/885\" target=\"_blank\" rel=\" noopener\">Ben\u2019s Friends Brings Learning About Patient Support to the Next Level<\/a><\/span><div class=\"rss_content\" style=\"\"><small>by <a href=\"\/\/forum.lifewithmultiplemyeloma.org\" target=\"_blank\" title=\"forum.lifewithmultiplemyeloma.org\">Ben_Munoz<\/a> on April 26, 2023 <\/small><p>Sascha Gallardo \u2013 January 20, 2020\nBen\u2019s Friends created a user-friendly online training facility that makes learning about providing support to patients simple and easy. Dubbed as Ben\u2019s Friends U or Ben\u2019s Friends University, it makes use of Google Classroom to create one virtual classroom for Moderators and another one for the Interns.\nUsing this G-suite tool, the Ben\u2019s Friends team is [&hellip;]<\/p><\/div><\/li><\/ul> <\/div><style type=\"text\/css\" media=\"all\">.feedzy-rss .rss_item .rss_image{float:left;position:relative;border:none;text-decoration:none;max-width:100%}.feedzy-rss .rss_item .rss_image span{display:inline-block;position:absolute;width:100%;height:100%;background-position:50%;background-size:cover}.feedzy-rss .rss_item .rss_image{margin:.3em 1em 0 0;content-visibility:auto}.feedzy-rss ul{list-style:none}.feedzy-rss ul li{display:inline-block}<\/style>","protected":false},"excerpt":{"rendered":"<p>\u00a0 Life with Multiple Myeloma is an online support community that helps people affected by multiple myeloma. Multiple Myeloma is a cancer of the plasma cells which are responsible for producing antibodies. In multiple myeloma, collections of abnormal plasma cells accumulate in the bone marrow, where they interfere with the production of normal blood cells. 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